It takes a village
Efforts like this take a village. Here’s how you can help move SELENON-RM research forward.
Share
Like, share, retweet our stories. Knowledge is power. Understanding SELENON and spreading the “word” will help all navigating this disorder.
Donate
Every single dollar makes a HUGE difference. Without private funding to the few doctors conducting research, treatment will never be possible.
Ways to give →Advocate
Talk with your local Senator, Congressman or even your business about SELENON and find ways to support fundraising.
Come to an event
Golf, galas, races and family nights: every event funds research and brings our community together.
See events →Reach out to volunteer or stay in touch
We’d love your help at events, with outreach, or behind the scenes. Send us a note and tell us a little about yourself.
info@givingstrengthinc.org
Stay connected
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Stay connected →
Treatment is possible, with your help.
Large pharmaceutical companies rarely fund ultra-rare diseases. Independent donations go directly to the research teams working on SELENON-RM.